Tuesday, April 9, 2013

The Far Field

I had thought I would be posting on the lead-up to Boston, and be more excited with attaining our IFOPA goal amount already. Yet something has happened that for the moment has suspended any joy I can feel, and I am the worst actor to never have stepped on the stage.

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On March 10 we visited Pet Helpers on James Island to look to adopt a new cat. It seemed like a good time, with Lexie getting older but still somewhat active. Being near my birthday, I was ready to bring another pet into our house.

We thought we'd look for a little older animal so it would not be too playful with Lexie and not too small so Baxter (our dog) might accidentally hurt it. After visiting all of the rooms we came back to the "Kitty Condos" where newer cats have individual spaces before they are placed into the larger rooms with the established cats. I understand the staff slowly introduces new arrivals to the other colonies to see which one will be the best fit for all.

When the staff helper opened the door to this particular cat, he climbed out and onto my shoulders. I immediately bonded and knew this was The One. We took him to a small playroom to get to know him better, and things just got better from there. I batted a small ball toward him, and he batted straight back at me. I tried some different angles and he never just hit it, but directly back to me. Jennifer seemed smitten by his kitten playfulness.

Yes, we'll take him.

He was 10 months old at the time, birthday from previous owner was given as May, 1012.

*******

Our new kitty was stunningly beautiful. Dark gold eyes to be almost orange. Long, slinky body and a pelt of deep black fur, with a brilliant sheen and silky texture. When he trotted he moved with the ease of a tiger, and when he ran it was with paws forward and wild abandon.

It only took a few days to introduce him to Lexie and Baxter, and over the next couple of weeks the stranger came into his own with lively antics that brought so much entertainment and joy to us all. From his long slides across the floors to his love of climbing on the cat towers he never ceased to make us smile.

When he played with you he never extended his claws or bit hard, just gentle swipes of his big paws and soft love nips. Often he would come up and extend a paw to your leg and look up. For the first time in a long time he was a cat that wanted to be held and only made the slightest motion when he wanted to be let down. He often looks at the ceiling; we think he recalls the high cat walks at the shelter.

I loved to see how quickly Jennifer and he made friends, they were fast pals and he often chose her lap to call his home, even with Baxter nearby. Jennifer arranged the patio so it was more enticing to him, and he spent long hours there, enjoying the wildlife tv playing in the backyard. My one fear was he would somehow get outside as he seemed to really want to explore his new country.

He was now 11 months old, so mature yet so still full of youth's immortality.

*******

When I get home from work I feed the pets before I run. All of them usually greet me, Baxter with a sweet hello howl and Lexie comes to her pantry bowls. This day only those two showed up, no sign of Mr. Entertainment. Jennifer thought he was on the patio and I felt a pang...had he gotten out?

If only.

I found our sweet boy curled up under the cat tower there, slow to move and no interest in coming to see me. He had apparently been sick all day judging from what we had to clean up. After a short discussion I drove to the emergency vet with one very ill kitty.

*******

The vet did an initial exam and it disclosed our kitty had a temperature of 105.5o. We decided it was best for him to be hospitalized overnight where he could receive whatever care he needed, and then we would see about a possible abdominal scan in the morning as something was desperately wrong. In my mind I was hoping perhaps an infection that could be treated, or maybe a food reaction. Possibly even a spider bite, as I killed a black widow near where I found him sick.

Early the next morning I called as I needed to work a half day and one plan was to take our boy to the regular vet if he was showing signs of recovery. The next words from the emergency vet stopped my power of speech. You cat may have...or...and there is no treatment for either one. End of life options given. Yes, I would come to be with him. I have to do this. I do not want to do this. I must do this.

Jennifer and I email and text and she takes care of the arrangements. I am in a fog, attend a meeting where I manage not to lose it, and make the long, long drive to the vet. I think if I drive slow he will be with us a little longer, but if I don't get there soon he will linger in terrible pain.

*******

They bring our sweet beautiful boy wrapped in a towel to me and leave us to our parting. Strong pain drugs have been administered and I cannot tell if he knows who I am. He is irritated at the catheter in his right leg and tries to bite it out. The pain in my heart swells as waves of grief take me under only to let me rise for a breath now and then drags me down into the depths again.

He wants down and explores the exam room, often looking up at the ceiling. After a few minutes I wrap him in the towel and let him look out the high window into the trees beyond and he relaxes a bit...I whisper words to him, feeling his soft fur on my cheek and not believing what is about to happen.

As he lies in my lap we send him out if this life and into whatever awaits us. I say this again and again with all that I am, I want no heaven that does not include our pets. Thanks but no thanks. If I could go with you I would. This pain is too great.

I look into the side of his face, his golden eye is open. I am lost. How can this be. Just weeks, not the years of joy we were looking forward to with this perfect little kitty.

Give him back to us.

*******

Home is very quiet now. I long to call out his name, to feel him lying on my lap, see him playing with Jennifer oh so gently with those big soft paws. I have attached his name to us all. Lex Pablo. Bax Pablo. Jen Pablo. Ricardo Pablo.

Come home with us.

*******

When I was in high school I drew this picture, pen and ink on paper. The tree was from a how-to book on drawing; I added the hills beyond. I gave this as a gift to my parents, and my mother has it to this day.

When I see an animal lying in the road, unfortunate to be at the wrong place at the wrong time, I transport it in my mind to this meadow. There is a stream nearby and many far fields full of others who take him in, a place where pain is unknown and fear and suffering are banished forever.

I learned not to fear infinity,
The far field, the windy cliffs of forever,
The dying of time in the white light of tomorrow,
The wheel turning away from itself,
The sprawl of the wave,
The on-coming water.

- Theodore Roethke


I did not want to send our sweet boy here, but late last night I awoke and missed him so much. We traveled to the far bridge, and I introduced him to Snickers, Kiki, Little, Cutie, and many, many others.

*******

The pain goes with me. It is all we have now. I don't want to stop hurting because it is all I have to remember him so close to us. It is the strength of the love we felt, that cannot be broken and cannot end.

Until we come home to you, you will be missed...

Don Pablo

Monday, April 1, 2013

The Official 2013 Boston Weather Forecast Obsession Page

I'm going to post pics of the weather forecasts from AccuWeather (14 days out) and The Weather Channel (10 days out) every day to see how the forecast and the actual weather turns out for the 2013 Boston Marathon.


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Sunday, April 14, 2013

It will be a perfect day to run!

Accuweather

The Weather Channel


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Saturday, April 13, 2013

Very nice conditions, PRs will be set, a little headwind

Accuweather


The Weather Channel


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Friday, April 12, 2013

Close enough to perfect for moi!

Accuweather

The Weather Channel


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Thursday, April 11, 2013

Still looking good and under 60o

Accuweather

The Weather Channel

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Wednesday, April 10, 2013

 No higher than 60o please, about perfect at start

Accuweather

The Weather Channel

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Tuesday, April 9, 2013

Some disagreement on the highs here

Accuweather

The Weather Channel

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Monday, April 8, 2013

I like it but a little warm


Accuweather

The Weather Channel

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Sunday, April 7, 2013

Still looking very good, quite a difference in these two

Accuweather


The Weather Channel

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Saturday, April 6, 2013

Looking good indeed


Accuweather


The Weather Channel

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Friday, April 5, 2013

Trending warmer but still okay

Accuweather

The Weather Channel N/A
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Thursday, April 4, 2013

Still very nice, little warmer

Accuweather

The Weather Channel N/A


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Wednesday, April 3, 2013

Near Perfect!



Accuweather

The Weather Channel N/A

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Tuesday, April 2, 2013
 
From shorts to tights in 24 hours

Accuweather

The Weather Channel N/A

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Monday, April 1, 2013

A little warm but not bad considering last year's heat

AccuWeather

The Weather Channel N/A

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Future





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Monday, April 15, 2013


Accuweather

The Weather Channel
 
        

Friday, March 29, 2013

Boston Bound Baby!

Boston Bound Baby! Pic by S&L Photography

Doing shorter two-a-day workouts while working 9 hours most days does not leave much time for my blog. With the taper beginning next week I hope to get caught up on some of my thoughts on what I am about to do: be the first amputee from my state to run the Boston Marathon.

Every single one of my insurance concerns have faded. I have everything I need to run Boston with a state-of-the-art prosthesis that is more than the sum of the components. I have an odd feeling at times with it. Whereas I will never feel like I have two anatomical feet again, I do feel like I have one anatomical and one residual limb and the latter transcends the prosthesis to have a natural feel all of its own. It makes me think I am running with a foot and with a residual limb, not a stump wrapped in a hard shell.

It is the very feeling I thought I might have before I began this journey. Had it not been for my friend Scott Rigsby and the committed-to-excellence people at ProCare I would not be running Boston on April 15. As I have said before, it has taken a small army to created the person you see above. How is it not a little miraculous that all the pieces had to come together to make this moment in time happen?

Elsewhere I wrote: "I seem to be going from moments of sheer disbelief to overwhelming acceptance that this is going to happen." If someone told me I'd be leaving for the moon tomorrow it will seem no less incredible to me than the fact I will be on that starting line in Hopkinton. 

I ran 22.22 miles for my last long run, and will do a MP (marathon pace) run this weekend. My long run was by the best I've had in the entire training cycle. From the first few steps I felt good; everything was working from head (often the most troublesome part) to my new prosthesis.

Later in the run my right hop (I misspelled "hip" there but decided to leave it!) flexor began to complain but otherwise I felt really good, so good that I wanted to pick up the pace some. However, not wanting to chance hurting myself so close to the race, I maintained pace with a slightly faster last mile. This run was the confidence booster I needed, knowing the Boston course is tougher than most.

Several times during the last 8 miles the thought came to mind: this is the last long run in preparation for THE BOSTON MARATHON BABY! It just seems so impossible yet comes toward me like a distant storm. The thunder I hear is my own heartbeat.

*******

Bingo for a Cure Event
I hope as you follow along with us for the next few weeks that you will considered helping in the best way possible. Defeat fibrodysplasia ossificans progressiva (FOP) here. We are making great progress toward our goal but with a little over two weeks to go we need your help. 

Ashley is going to be at the race along with an FOP family in the area. Can't we make this day even brighter for them? Yes!

And that will be a mighty wind at our back, and nothing - not even FOP - will stop us ever again.

Sunday, March 10, 2013

Jato Reborn

Jato
Been a busy week since returning from ProCare with my new prostheses, both running and everyday legs. Oh where to begin?

On March 1-2 I did the gait study at Georgia Tech for a grad student's doctoral thesis over two days. I was wired and markered and given run or walk tasks while data was collected. I actually found the most difficult one where I had to walk and near running speed while maintaining an actual walk gait, that is, both feet on the ground at all times, none of this flying (both feet in air) business that love so much.

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Mike in competition
After the study Mike Lenhart met me and we headed to lunch. Mike, along with Randy Spellman, will be one of my two guides for the Boston marathon. Mike is the founder and president of Getting2Tri, an organized dedicated to helping the disabled through sport. Mike has served as a running guide for many athletes, including Richard Whitehead, Scott Rigsby, and Jason Gunter to name a few. 

We talked about many things, from the G2T Camp to running The Big One and a few subjects in between. Mike is one busy guy, a good friend, and someone who has shown through action that he cares deeply about his cause.

The single thing that comes to mind about his organization is that the athletes always come first; the athletes do not exist to promote or even financially support the foundation. However, the unparalleled program and lasting friendships found there create an atmosphere like no other, more of an extended family of people helping people, people who need some direction in becoming more than they thought they could ever be.

*******

After our lunch I hit the road home, and found myself listening again to "Across the Nightingale Floor" by Lian Hearn (Gillian Rubinstein). From this book came the name "Jato" for my running blade. I have listened to the "Tales of the Otorio" audiobooks many times; I feel I know the characters like living people. It is as if they spoke to the author and she wrote down their story, across time and cultures.

On Sunday Jato and I were scheduled for a ten mile run. First an easy 3 on the treadmill to make sure all systems were a go, then 7 outside. It was a cool day and very pleasant for running though a bit windy at times.

Later I wrote to ProCare about my run. I am going to reprint it here because it says exactly what I felt:

"I just couldn't wait to tell everyone that I ran 10 miles in my new prosthesis this afternoon. Not once did I have any discomfort or pain, not even a hint.

It was the best feeling run since I began this entire journey, several times I found myself smiling even as I was working hard. This was finally what I had thought it would be like all along and what you guys had been telling me others were able to feel. It had been many years since I felt like this on a run. Many years.

Thank you for making this possible, for the support and for understanding. In 42 days I am going to run the Boston Marathon, 4 years and one day after my surgery. And over 5 years since my surgeon, before we discussed amputation, said "Dude, I'm afraid your running days are over." 

I think "making the impossible possible" would apply to what you and the entire staff have done for me.

Thank you for all the hard work, long hours...and excellence. I hope you know how much it is appreciated, quite possibly more than you will ever know."

*******

      Jato reborn (left) and old (right)
This picture shows the huge difference between my old and new sockets, it is visually apparent of the large volume change my leg experienced because of last year's issues. I am wearing no more than two plies (sometimes one) of prosthetic socks with the new legs; I was wearing up to 14 plies in the old leg.

The new running foot is a Freedom Innovations Catapult. When I first tried this foot on the test socket last November, I was not certain it was significantly better than my Nitro. But I did not get a chance to wear it in the definitive socket because my insurance was denied so we could not move forward. I can say with my new prosthesis, which uses Ohio WillowWood LimbLogic elevated vacuum, is all I dreamed amputee running could be.

My old vacuum pump clogged while I was at ProCare and is out of warranty at 2 years. Since my original insurance preauthorization and subsequent denial did not contain a request for a new pump, we are resubmitting for it. The cost to clean and/or fix the old pump ranges between $500 - $1500. Since the misnomered "Affordable Health Care Act" reduces the money I can apply from my cafeteria plan from work, this will be a significant out-of-pocket cost to me in the future. Big ol' expensive sigh.

*******

Today I plan to run 20 to 21 miles with Jato. It is a beautiful, clear day with a high temp of 67oF, so a good day for an LSD. I do hope my training effect will help make the run somewhat easier and allow a decent pace in the latter miles.

As I write this we have 35 days until the race. 4 longer runs, 3 sessions of long intervals, and then the taper. Our fund raising continues to pick up momentum with us approaching the 50% to goal mark. New knee brace has arrived, I sewed Old Glory on my Boston ReadyReady shorts, and weekend dinner plans have been finalized.

Soon I will be packing my bags for The Boston Marathon. If I am sleeping please don't wake me because I am living the dream.

Impossible Is Nothing
- Jason Pisano

Thursday, February 28, 2013

A Thousand Steps

From left, moi, Ashley, and James
Yesterday we finished up with the test socket fitting at ProCare. I had hoped to run 4 miles on the treadmill in the morning, but after 20 minutes I got a message that the internet was down at the office. Oh joy and happiness. So back to my room and laptop for some troubleshooting. With my appointment coming up, I packed up and headed out.

Even with the added stress of the office without net access, I could not lose my happiness in seeing our SuperStar friend Ashley. Her mom Carol, sister Emily, niece Mia, and friend James would join us for lunch.

I ran for another 20 minutes on the treadmill in the gym at ProCare to see if any of the initial sensitivity I often get in my limb would appear. It did not show up. Good. As in good riddance!

Next my "everyday" foot was installed on the test socket. I am having this prosthesis set up to double for trail running. The blade is not suited for some of the trail runs Eagle Endurance concocts like the Almost 9 Miler Trail Run. It is a fantastic course, many lowcountry vistas best experienced on foot, or rather feet. When Jato and I ran it, I spend most of my time planning my right footstep to miss a root or depression in the ground. I spent nanoseconds enjoying the views.

I ran over some roots on the side yard at ProCare, then over some loose gravel and rocks on a small rise near the drive entrance. Running on a blade and on a shoe are very different animals; the shoe definitely handles these terrain changes better, but is not as natural as blade running has become to me. I did my first running on a much less advanced prosthesis with a shoe, so although this felt a little odd it was not unexpected.

*******

Just before I started this trail run test, Ashley arrived and they waited in the lobby while I finished up. Sometimes the thought comes to mind about how my life has changed, that my desire to run again had bought me to this place, to meet these people - these friends. I would not have been here today but for a lifetime of circumstances that brought me to this place, this now. How improbable that I was here, and how strangely blessed I was to be here, more than I could imagine.

***

We caravanned to a local restaurant and enjoyed a good meal. I was interrupted by work twice, but we finally resolved the internet issue so that was a relief. So good to hear old and new stories and, of course, the plans for Boston. Ashley's first race will be The Color Run on April 6. Since this is so close to the marathon we won't be attending, but I know it will be one fantastic day for Team Ashley. Join her team for this fun event if you can!

*******

Started this Thursday off with another work issue, but since I don't go to ProCare until later this afternoon I wasn't pressured as much. We are getting near the finish line for the new prostheses, but I will be coming back in two weeks to make sure my new inserts fit and take care of any issues I may uncover as I continue my training.

I plan to participate in a walking and running study at Georgia Tech Friday evening and Saturday morning, then back to home later that day. It has been a great trip so far and one I really don't mind making in the least. We've had to work hard to make this happen, and soon I will have...magic legs. They will help me fly.

45 days to go.

Band of Brothers

Impossible is Nothing 

- Jason Pisano


Monday, February 25, 2013

The Dude Abides

Ready for a Twenty (S&L Photography)

Sunday was a scheduled 20 miler. It would be a marathon day in that I would be driving to Buford, GA, afterward so I could be there bright and early for my Monday appointment at ProCare. My confidence was better for this run, but knowing my leg could revolt at any time tempered my enthusiasm.

I began with 4 miles on the treadmill. After that I ran 7 miles with Jennifer, we had a good run and it was very nice to have some company for my longer effort. I rested for a bit after this, then headed out for the final 9. This went well, but as expected the later miles were tougher. From 17 on I was wishing I was finished and on my way to Georgia, the last mile was not exactly pleasant in Mount Pleasant.

After my shower I finished packing my bags which was mostly my prostheses and prosthetic supplies. My sweet wife prepared a treat bag for me, healthy snacks that I was so appreciative of during my trip and now here in Buford. Leaving around 6:30 pm, the traffic was far lighter and I-85, often a madhouse, was a leisurely cruise.

That evening when I doffed my prosthesis I was shocked to find I had bled a little from a small abrasion on the distal end of the tibia. Seemed I got in town just in time.

*******

My CP Rachel worked with me most of today on my new running prosthesis. I have one area of intense discomfort that often goes nuclear and makes it either difficult or impossible to run. It often becomes apparent early in a run but if it happens later it can stop me in my tracks. If we can address and prevent this from happening I will be able to return to training without compromise. There is significant swelling around the distal end of my fibula and I hope to stop this from happening in the future.

Tomorrow I will be trying a new test running prosthesis. I am hoping we will be able to give some relief where I need it and proceed with the definite leg. I'd like to do a longer run on the new prosthesis before leaving ProCare, so we can address any minor issues right away.

*******

I may be doing a running and walking gait study at Georgia Tech later in the week. This is the same place where Getting2Tri has camp every year, so I am somewhat familiar with the campus. I am in reasonable though not top shape, still, it will be interesting to go through these tests and see what my results are.

*******

After this week I will have 4 weeks of training remaining, then the taper. The Boston Marathon is just 48 days away. I go through periods of disbelief that I will be running it, and extremely emotional moments when I think of being there and actually running it. I often think of everyone who has made this possible; today I was thinking it is not a small army, rather a very large one who has helped get me to that starting line in Hopkinton.

But I must thank once again Dr. Blake Ohlson, who believed in me and my dream and has always been available to help me run down this most incredulous path. I never grow tired of telling the story of when he told me: "Dude, I'm afraid your running days are over," to performing the very operation that brought me back to my running life.



The dude abides.





Wednesday, February 13, 2013

Pre Valentine

I received The Call today, appropriately from a nurse at BC/BS.

My appeal was successful, I will be getting my new legs: a new running prosthesis and a new socket for my everyday leg.

I could hardly finish speaking to the nurse and my mind left the planet as she was telling me my prosthetist would be contacted. I had prepared myself for the worse, knowing I had to be ready for a denial...I could not let it crush me. Suddenly that massive boulder moved. And it moved off my shoulders and floated away, lifting the stress and uncertainly from my mind and heart.

Jato will be prepared for our greatest challenge yet, the battle that will be Boston. I won't have to entertain the thought of walking to the starting line on crutches to avoid irritating my leg before the race. I will be ready.

Thank you Blue Cross Blue Shield of South Carolina. I believe I will be the first amputee from our great state to run the Boston Marathon. Thank you for understanding how the past year's issues caused my need for new prostheses; know that you will see what this means to me, to all of us, on April 15. It will be a day like no other.

And once again thank you my many friends, most whom I would have never come to know without the path adversity set before me. Your support and personal efforts by many helped bring this day into the light.

From all that I am, thank you.

*******

"Now I will turn the miracle into routine. The amazing will be seen every day."

- Pi, from "The Life of Pi" (Yann Martel)